Rare species of disease Epidermodysplasia Verasiformis
'Epidermody esplasia verosifermis' disease. Such infected patients are called tree-men. It can be caused by the Human Passerus virus. One person was diagnosed with the virus in Indonesia in 2006 and another in Romania in 2009. Looking at Abul Bajandar's hands and feet from a distance, it seems that something resembling a tree stalk or root has come out. Again it will seem like a piece of stone from very close. Abul Bajandar, a 25-year-old man from Paikgachha area of Khulna, has lost all his fingers and some parts of his feet including the palms of his hands. The fingernails and toenails are lost inside the flesh. Proper care and human courage and cooperation from the side will increase his morale as well as have a positive effect on his treatment.
The disease is caused by a type of virus called ‘Epidarmodi esplasia verosiformis’. In medical science it is called 'Tree Man'. Although not completely good, it is possible to return the affected people to normal life through surgery. The number of such rare patients in many countries of the world is much less. Since the discovery of this disease in Bangladesh, especially in Asia, twenty similar trees have been found in humans. On the one hand as they are physically ill on the other hand they are neglected by the people of the society and family. It is possible to bring them back to a beautiful life through proper maintenance and good treatment under the responsibility of a particular medical center or voluntary organization.
The disease is caused by a type of virus called ‘Epidarmodi esplasia verosiformis’. In medical science it is called 'Tree Man'. Although not completely good, it is possible to return the affected people to normal life through surgery. 05 such patients have already been found in Bangladesh. With the right arms transplants and surgery, these helpless people can return to normal life. To make their lives easier they need to show proper treatment as well as mental endurance. It is impossible for his family to reduce the amount of money needed for the well-being of patients with this rare species of mental disorder. So without humanitarian aid, there is no alternative to all kinds of help and cooperation from their side to restore order in their lives.
The first tree to be identified in Bangladesh is from the Khulna region. Through his proper arms transplants and surgery he is now somewhat healthy. According to the advice of expert doctors, it is possible to bring these patients back to normal life through proper observation and maintenance of this rare species. The number of patients suffering from such rare species in Bangladesh so far is 05. Given the geographical location of our country and our organization as a voluntary organization, we think that our organization will play a special role in bringing the patients of this rare species back to normal life.
- Optimize holistic care for people with rare diseases—including physical, mental, social, and legal support
- Pilot
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The first tree human to be identified in Bangladesh . Besides, another 10-year-old girl named Shahana is suffering from the same disease. The number of patients suffering from this disease is increasing day by day. According to expert researchers, this rare species is mainly a skin virus. Proper care as well as proper care can help them return to normal life.
This rare disease is new in all countries of the world. Many people have no idea about this disease. Patients suffering from this rare species of disease also at one stage became frightened and took themselves to the brink of death. This rare species disease also keeps people away from family or society. Therefore, if regular medical services are provided to them through proper care, one day these patients can also return to normal life. This will create awareness in the minds of the people so that they will be able to stand on their own two feet without feeling helpless in the face of this rare species and the Mohila Unnayan Sangstha (MUS) will always be by their side.
The Mohila Unnayan Sangstha (MUS) has always been a non-profit organization. Parikar is committed to provide financial and psychological support to the people for their welfare. In the days to come, the Mohila Unnayan Sangstha (MUS) will be by the side of the patients suffering from various rare and deadly diseases for their services, support and treatment as well as all their needs.
Not Applicable
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Bringing patients back to normal life through surgery in this rare species.
To bring the patients of this rare species back to normal life by providing regular medical services with the help of state-of-the-art medical services and specialist surgery doctors.
- A new application of an existing technology
- Big Data
- 3. Good Health and Well-being
- Bangladesh
- Bangladesh
- Nonprofit
Not Applicable
To co-operate with them to ensure their proper medical care to ensure the social rights of people suffering from rare species diseases on a voluntary basis.
- Organizations (B2B)
We can strengthen our fundraising through charities as well as local, social entrepreneurs and various voluntary organizations.
During the Corona epidemic, when the strict lockdown system was in place, we have provided various financial assistance including relief and medical services through the help and cooperation of various organizations and individuals in the country. In the future, even if we face a bigger problem, we can overcome all the problems and work in the service of the people.
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Executive Director