Vitaway RareCare

Sadly, the healthcare system fails to accommodate the individual with rare diseases and struggles to meet the needs of patients and health teams as evidenced by the continued decline in care coordination and care delivery for adults and children with rare diseases.  It is not customized to meet the needs of patients with rare or little-known diseases as evidenced in this pandemic with COVID-19. Diseases are not a "one size fits all" approach. In Africa the care of Rare diseases patients became worse where  Our current healthcare system remains fragmented; patients and health teams lack the tools, trusted information, patient discrimination, and neglected patients needed to provide safe and efficient patient care for patients with rare diseases. 

If we don’t take action most of them are recessive genes they may become dominant and maybe become epidemic it may become a big issue we need to start taking action now and the only action can do is to invest in systems that take care of people should it happen so we say that ready this is everywhere the disease may be rare but one thing that is Navarre is to be able to instill some form of hope and the people who are affected hope is free you don’t buy hope you can help people to get hop and so together to build a better healthier world we have to ensure to achieve that we have ensured that everybody is saved whether you have a common disease or rare diseases  leave no one behind in health and society and we ensure that no continent is left behind Africa is way behind let’s be sure Africa gets there and ensure that every country is not left behind.

Vitaway RareCare is AI data-driven platform on a mission to optimize holistic care and wellness among people living with rare diseases by accessing daily care management from specialists, education tools, and safe space groups with actionable insights. We are starting building technology used to meet a set of a number of priorities these include better coordination care, more use of digital tools, and increased awareness by using AI in gathering patient and carrier person and monitoring their health, Telemedicine, video appointments in improving treatment process more efficient, patient experience and support future rare diseases research. 

And also vitaway RareCare will be the social inequity help identify Rare diseases patients as a vulnerable group within the population and informs policy decisions, resource allocation as well as practices and actions.

We are the voice of Rare diseases patients in Africa, especially Rwanda, use of virtual multidisciplinary platforms including Artificial Intelligent in tracking the rare diseases,  telemedicine, video appointments to reduce the cost of treatments, and accessibility to those in rural areas are starting to be implemented across some rare disease services and are great examples of using technology to support better care coordination in improving treatment process more efficient, patient experience and support future rare diseases research. 

Vitaway Rarecare will be the social inequity help identify Rare diseases patients as a vulnerable group within the population and informs policy decisions, resource allocation as well as practices and actions. With Vitaway RareCare the 35% of under-five children mortality due to untimely treatment and follow-up will saved by setting screening newborns who are born to have are diseases and increase accessibility to the treatment by advocacy and allocation  to the policy maker, donors etc.., creating community support and engagement both platform known as Safe space group and physical in management mental health issue and discrimination. 

Finaly Vitaway RareCare will connect and create network of Family of Rare disease patient, Support group which is Genetic allience, Professional in rare diseases  and corporate bodies who are investing in Rare diseases.

I am a young businessman with a decade of passion for promoting health and wellness to the community where I am the core team member of CareMe Bioplastic ltd and CEO & Founder of Vitaway E-Clinic project nominated in Unleash Plus 2021 Program. And I have attended more entrepreneurial programs, Incubators both local and International  enable to increase my Entrepreneurial experiences.  

We are a full package of five core team members with different experts and experience in the health sector which we are working on composed of medical students, a Health service manager, and a website developer and Advisor members in health sectors . Because we had a chance to work on initiatives like this before and our academic background put us in a great position for this project.

I am highly interested in behaving of Vitaway RareCare to applying this Horizon prize challenge because I expect to gain different benefits and solutions to our Venture of investors and partners, such as Professionals, in Rare Diseases, Drug manufacturers, and donors who come together to Save the world invest in rare disease helps to promote sustainable development goals these are people who are neglected and marginalized within the health sector and the cost is huge if you have rare disease most families lose their job because of they have spent time moving from one hospital to other they can balance their work like they starting becoming poor that’s one of the goals if we do that we are helping to reserve relieve them helping to promote good health and promoting quality education, gender equality. Of course, we are competitive to win this prize of Horizon which will help to implement different services such us networking with Families living with Rare diseases, Health providers and Investors, accessing treatments and campaigns raising awareness the Rare diseases patients in fighting discrimination and loneness.  

If we don’t take action most of them are recessive genes they may become dominant and maybe become epidemic it may become a big issue we need to start taking action now and the only action can do is to invest in systems that take care of people should it happen so we say that ready this is everywhere the disease may be rare but one thing that is Navarre is to be able to instill some form of hope and the people who are affected hope is free you don’t buy hope you can help people to get hop and so together to build a better healthier world we have to ensure to achieve that we have ensured that everybody is saved whether you have a common disease or rare diseases  leave no one behind in health and society and we ensure that no continent is left behind Africa is way behind let’s be sure Africa gets there

We are the voice of Rare diseases patients in Africa, especially Rwanda,use of virtual multidisciplinary platforms including Artificial Intelligent in tracking the rare diseases,  telemedicine, video appointments to reduce the cost of treatments, and accessibility to those in rural areas are starting to be implemented across some rare disease services and are great examples of using technology to support better care coordination in improving treatment process more efficient, patient experience and support future rare diseases research. 

Vitaway Rarecare will be the social inequity help identify Rare diseases patients as a vulnerable group within the population and informs policy decisions, resource allocation as well as practices and actions. With Vitaway RareCare the 35% of under-five children mortality due to untimely treatment and follow-up will saved by setting screening newborns who are born to have are diseases and increase accessibility to the treatment by advocacy and allocation  to the policy maker, donors etc.., creating community support and engagement both platform known as Safe space group and physical in management mental health issue and discrimination. 

Finally, Vitaway RareCare will connect and create network of Family of Rare disease patient, Support group which is Genetic alliance, Professional in rare diseases  and corporate bodies who are investing in Rare diseases

Global rare diseases are known and aren’t easy to get data but it is possible, when you come to Africa high percentage of the population they don’t know what are rare diseases means it is cerous to know how to care about those struggling Rare diseases some people in their communities think it is cute, punishment from god or magic and also the Health care professional and health system in Africa they are busy with communicable diseases and infections diseases.

Vitaway Rare will increase the awareness of the Rare disease in communities by using campaigns on both physical and online platforms. Our system will help those Patients living with Rare diseases to access the useful information on how they can with their diseases and how they can minimize the risk for their generations in the future, apart from information will increase the accessibility of treatment by creating the online session with specialists around the world.

Our impact projection, we are expecting to raise awareness for Rare diseases where more than five countries will be reached in 10 years and 5million people live with Rare diseases reached. 

We our system solution and using technology will help us to measuring the progress where Sustainable development goals (SDGs) we are working on are: 1.SDGs 3b Good health and well -being : Promote mental health and well-being  on this SDG our indication is suicide mortality will be reduced because they will benefit to our services like safe space groups and accessible to healthcare services will increase their hope.

2. SDGs 3.8 Achieve universal health coverage, including financial risk protection, access to quality essential health-care services and access to safe, effective, quality and affordable essential medicines and vaccines for all with indication of healthcare services accebilities  and 

our indicators to increase accebilities to the healthcare, our platform will increase number of people access the health care services on affordable on whole comphensive high quality's health care services 

3.SDGs 8.5.1By 2030, achieve full and productive employment and decent work for all women and men, including for young people and persons with disabilities, and equal pay for work of equal value. 

our indictor is to increase employment equally between Men and women, our services will help the families have rare disease patient to reduce the time spend finding the healthcare services for his/her patient and use that time to work for the family and development for themself and country in generally. 

My name is Emmanuel HAKUZIMANA, Founder of Vitaway E-Clinic which currently operates in Rwanda, I was born in a rural Northern province, and grew up in Kigali city where getting access to healthcare services was difficult. Imagine how can 1 doctor serve 12,000 populations also there are some people neglected and discriminated against because of Genetic diseases not common where they said it is coming from ghost spirits or punishment from God known as Rare diseases. so with this problem, I grew up with a desire to save more lives and fill in this gap. Eventually, I  achieve this dream by becoming a medical student, so by the time I reached my clinical years I wanted to do research about Rare diseases and why they are neglected and discriminated against. I found that health sectors and health providers do not have trusted information and enough tools to care for them and also the families living with Rare diseases have mental disorders, untimely medical follow-up, lacking information, and education, and lack of treatment were major issues those patients face so it many times leads to death, and the development of further complications in those patients and their families such poor and lose hope,  so as a problem solver. I have sat down and thought, How can I solve this issue then, I come up with a solution of using Artificial Intelligence to analyze and compile data so that I can give these patients personalized feedback on how they can manage themselves, and also keep those data for future reference to the medical doctors so that she/he can diagnose and treat those patients accurately called Vitaway RareCare is AI data-driven platform on a mission to optimize holistic care and wellness among people living with rare diseases by accessing daily care management from specialists, education tools, and safe space groups with actionable insights.

Vitaway RareCare is multidisciplinary  data-driven platform which act as system of integrating people together  families lives with Rare diseases, Genetics professional and investors to optimize holistic care and wellness among people living with rare diseases by accessing daily care management from specialists, education tools, and safe space groups with actionable insights. We are starting building technology system combine multidisciplinary platform such as Medical record system ( MRS), Virtual Access Interface (VAI) and Telemedicine with Artificial Intelligent  used to analyze the Data correctly for improving treatment process more efficient, patient experience and support future rare diseases research.

I am a young businessman with a decade of passion for promoting health and wellness to the community where I am the core team member of CareMe Bioplastic ltd and CEO & Founder of Vitaway E-Clinic project nominated in Unleash Plus 2021 Program. And I have attended more entrepreneurial programs, Incubators both local and Interntantion enable to increase my Entrepreneurial experiences.  

We are a full package of five core team members with different experts and experience in the health sector which we are working on composed of medical students, a Health service manager, and a website developer and Advisor members in health sectors . Because we had a chance to work on initiatives like this before and our academic background put us in a great position for this project