Caregiving Essentials

Currently, the primary beneficiaries of Caregiving Essentials!SM delay before taking action in preparing themselves for the new reality.  Family caregiver often do not self-identify in their role until the second or third stages of caregiving.  Care recipients may not realize the benefits of planning or the costs of long term care services and supports (LTSS), while diagnosing providers have limited knowledge to accurately inform the family in non-treatment next steps.  LTSS  organizations deliver their solutions when the dyad seeks such services, often while problem-solving an immediate need to an emerging, yet predictable, situation.

The State of New Hampshire has approximately 170,000 family caregivers.  Eighty percent (80%) of long term care services are unpaid, with in-home care being the preferred delivery and least costly setting.  Services and products that help maintain the care recipient in their preferred setting while allowing management of resources and well-being are needed as early in the caregiving stage as possible.

Family caregivers, with inaccessible services and supports, are doubly burdened as they perform add-on, unpaid, unregulated work, in a role lacking competency definition, with many “unknown” aspects negatively impacting physical, emotional, and financial health as they toil in silos, isolated from one another and from society.  As the need for unpaid family caregivers continues to grow over the decades, government will continue to rely upon them to disproportionally fulfill the service costs it is unable to afford.  While methods to access caregivers — word-of-mouth to brochures to web links — continue to be updated, “caregiving" itself remains a discovery process rather than a process enveloped in structure and standards.

Caregiving EssentialsSM centers  the dyad in the caregiving experience —   dyad-centric and personalized education, training, planning tools and mentoring services on non-caring duties throughout a care continuum —  to influence predictive positive outcomes while minimizing negative consequences.

Caregiving Essentials will deliver value-added non-care interventions, currently absent from the long term care market, to achieve impactful outcomes.   

Caregiving Essentials empowers and equips the caregiving team, caregiver and care receiver, to plan their care and well-being skillfully and resourcefully through competency definition and dyad-centric contextual knowledge throughout the care continuum, directly improving their well-being and quality of life while decreasing societal costs through optimum utilization.

Its uniqueness is in (a) defining a core body of knowledge of the caregiving role; (b) mapping responsibilities to the care continuum; (c) guiding the dyad in attaining their goals through personalized and customized plans of actions for non-caring and caring tasks; and (d) empowering the dyad by setting expectations and by providing knowledge to manage risks and resources, thereby (e) empowering agency for intentional action and decision by an individual unit (dyad) interfacing with existing systems.

Understand  and Define the Caregiving Continuum.  

(1) Understand the caregiver role and responsibilities, caregiving concepts and care continuum (2) Identify the caregiving role among roles, role suitability, and promote role-ownership; (3) Align care receiver and caregiver goals; and (4) Link benefits of planning, risk management and certainty to long-term well-being and outcomes.

Promoting and Perform Planning Long Term Care  

(1) Document goals, assumptions, risks;  (2) Plan and manages goal-oriented resources (Time, Money, People);  (3) Provide use of structured documents and tools, that are flexible, customizable, and whenever possible, pre-populated; (4) Assure timely preparation through reminders and/or assistance for caregiving activities.

Providing Dyad-centered Technology Solutions that involve caregivers within the community. 

Achieve collective/individual balance through a community virtual presence using technology to: (a) elevate awareness and understanding of the role; (b) afford easy access to a knowledge-base of caregiving related tools, training, resources to plan, prepare, and perform; (c) engage caregiving teams to participate in new solutions to caregiving gaps and unaddressed needs; (d) entertain  novel funding solutions for the caregiving team and novel approaches for ad-sustaining revenue for the site.

BENEFICIARIES

The PRIMARY target market and Direct Beneficiaries and direct customers are caregivers and care receivers (dyad)

The SECONDARY target market: Organizations who provide training to caregivers (or potential caregivers) that benefit from utilizing Caregiving EssentialsSM services and products at no cost (for those within the network) to directly advance their mission of service while also advancing Social Impact Value of Caregiving EssentialsSM. 

IMPACT

PRIMARY target market:  

The care receiver benefits from articulating goals, which will drive downstream decisions and activities that enable goal outcome.  

The caregiver benefits from understanding, preparing and managing resources, risk and well-being within each stage of the six stages of caregiving, sustaining the well-being throughout the care continuum and post-caregiving.  [Well-being refers to physical, emotional and financial aspects of an individual’s wellness state.]

The dyad collectively benefit in enacting strategies that conserves resources in the advancement of the dyad goals.  A dyad subset, caregiving teams with modest assets who desire home-based care setting, will accrue additional benefits.

Caregiving Essentials implements an innovative framework for eldercare that empowers the care team, through technologically-accessible definition, knowledge, tools that advances caregiving planning, preparation and performance, while balancing the power dynamic between individual families and organized systems. 

Caregiving EssentialsSM products and services offerings will seek to be a constant, reliable presence for the dyad from the outset and throughout the caregiving continuum, by providing value-added benefits that improve well-being and advance goal achievement.  Greater benefits are derived from use in the earliest stages of caregiving, therefore  Caregiving Essentials!SM will focus on offerings that contribute appreciable value for the customer. 

Products need to be well-designed and content-rich, easy to access and use and reliably assists in meeting dyad goals.  Services need to enhance and compliment product use, and support and enrich the caregiving experience.  Therefore, the  marketing of offerings will begin up-stream, with customer involvement in product development through testing that ensures that offerings are easy-to-use, understood, and reliably completed.

Products and services that become a constant, reliable presence for the dyad from the outset are more likely to be a resource used throughout the caregiving continuum.  The derived value-added benefits will reinforce the value to users for continued use and reinforce the message to likely adopters or promotors, leading to more users.

SECONDARY target market:  

Mutual benefits are derived within the secondary segment.  Caregiving EssentialsSM expands its exposure, access, customer-base and web traffic while the partner organizations offer a value-added service to mutual customers at no added cost or effort.  (In addition to the network of partner organizations, employers and medical organizations also comprise this market segment.)

Services and products are built upon a “Preparing Family Caregivers Throughout the Care Continuum Framework” model founded in research, industry best practices, observation and personal lived caregiving experience.

Volunteer work at the state and national level, along with market research and limited customer feedback, validates the value-added benefit-gaps exist and services and products will be well-received. Also, a recent presentation by an Alzheimer’s Association funded project revealed a leverage potential of financial planning while confirming best ways to ensure adoption.

Products exist in a useable state that once tested for completeness and usability can be a starting point for software requirements.  Feedback from a limited customer survey validates and contributes to development refinement.

90 per cent: Plan/Risk/Management; 

80 per cent: Tools to Prepare, Manage, Preform;  Tools to document and aid in health management & communication;  Cultivated best links to address specific activities;

70 per cent: Planning goals, financing, activities;  Planning Companions;

60 per cent:  Locate support groups; Timely alerts to caregivers of important notifications; product/service improvements contributions

ABOUT TEAM POSITIONING:

My early years of navigating through “exclusion” experiences of patriarchy, class, gender and “ability” contributed to my learning experiences gained from observation education, and communication.  

Working at the national effort managing complex, innovative IT software development I applied equity through a “selection-blind process” centered on objective-based application reviews preserving candidate anonymity, and inclusivity by providing weighted value to transferrable skills while achieving diversity by forming a talent-rich team composition hailing from heterogenous cultures, backgrounds, identities. 

I embrace the diverse richness of individuals, organizations, cultures, and the national influences and ethnic backgrounds of each personal-lived experience within a team.  Teams that assemble around a goal, unify as symbiotic whole when infused with values and a supportive inclusive environment.

I view the constituency served by this endeavor to be reached through contextually appropriate education and knowledge imbued with respect, dignity and understanding.  To that end:

DEI will be built into the product by engaging a mix of urban/regional communities, as well as proportional minority representation in the more diverse urban areas,  in product design, development and implementation.

Additionally, board members will have diverse backgrounds.  Of the five members, one will be male, two will be BIPOC, three born outside the US — two of whom are naturalized, one who is a person with a disability.

Consulting on (1) non-profit validation (2) overcoming market barriers and (3) technical solutions 

Technical solutions (1) as-is transition form based templates to simple in the hands of a skilled developer; (2) to-be possibilities to trial for one product [to overcome ‘planning bias” and increase likelihood of completing plans, by incorporating “Reward Milestones and Feedback” for each planning/preparation stage.

Caregiving EssentialsSM fills a void in the current long term care market, with no comprehensive dyad-centric products and services.  While education and materials are offered by organizations and on-line to caregivers, these programs address disease and direct aspects of caregiving.  The organizations who provide training to caregivers offer it as a complimentary service to its core services, such as adult day care or in-home nursing visits.  While these potential competitors have a ready-built customer base, their trainers lack the background to provide the training offered by Caregiving EssentialsSM  non-caring activities, job competency, and planning and management activities related to the dyad-goal success.

Caregiving Essentials SM , in addressing the unmet need within the long term care industry, will :

(1.). IMPLEMENT A NEW BUSINESS MODEL:  Caregiving Essentials SM will provide caregiver planning training and products for caregivers that center around the care continuum  and map to the dyad-defined goals, non-existent in the current market.  Additionally, it offers an innovative perspective of caregiving competency: articulating and aligning caregiver skills to the caregiver role.  Collectively, dyad-centric long term planning with a family caregiver competency is a unique offering in the long term care market.  The innovative framework will have technologically-accessible processes, products and services (that include definition, knowledge, tools that advances caregiving planning, preparation and performance) for the care receiver and caregiver.

(2.). EMPOWER COMMUNITY TO IDENTIFY THEIR NEEDS:  Caregiving EssentialsSM also aims to engage the community in understanding how well existing long term care services and supports industry (LTSS) is performing, learning and prioritizing unaddressed needs, and facilitating new caregiver-driven solutions.  It will accomplish this by leveraging its network connections and community platform.

(3.). TRANSFORMING THE POWER DYNAMIC BY EMPOWERING THE CARE TEAM:   Access to care receivers and caregivers will be centralized, changing the power dynamic.  Caregiving Essentials implementation methodology will leverage the technology that delivers its products and services to  a self-subscribing centralized community of caregivers and care receivers.  The empowerment that results from proactive, informed decision making rather than reactive, solution seeking will be enhanced by balancing the power dynamic  between individual families and organized systems, moving from the “as is” of  distributed access and incremental knowledge to the “to be”  where the caregiving team are fully aware, empowered with agency, at the center of the service access point.  

Caregiving EssentialsSM societal impact goal is to sustain both the caregiver’s well-being and care receiver’s goals at no or decreased cost to society.  Specific processes and metrics will be identified and measured to assure the organization meets its goals.  Measures are number of family caregivers enrolling and planning.  Short term measures include:

-- Dyad completion of goals, with completion rate increasing as penetration growth increases;

-- per cent  in-depth training accessed and % in-depth training completed

-- Surveys of active, enrolled caregivers

Phase Description Year Goal

0.  START UP 0-1 0. Establish organization and key infrastructure

1.  INITIAL  1-2 1. Pilot Test;  Market Foothold; Regional Presence

2.  SHORT TERM 2-4 2. Limited - Regional  Implementation

3.  MID TERM 3-5 3. Expand State-wide Implementation

4.  LONG TERM 5 plus 4. Monitor, measure and improve

START UP: Year 0-1. GOALS:  Establish organization and key infrastructure

Develop partner and distribution channels using Awareness and Education materials.

METRIC:  Access point identification; Network of promising partner organizations

OFFERING:  Plan the Care Kit design and review

Phase 1:  INITIAL:   Year 1-2 GOALS:  Pilot Test;  Market Foothold; Regional Presence 

METRIC:  Education content delivery through partner- and direct access points; Product usability 

Year 1:  7-25 family caregivers

Year 2: 25-50 family caregivers

OFFERINGS:  * = product/service delivering social impact value

*Plan the Care Kit

<Enabling service> Awareness and Promotion Materials: Stakeholder Explainer of Dyad Benefits

<Enabling service> Awareness and Promotion Materials: FCG Competency Awareness

*Website

*Website content, limited offerings

*Voices for Choices:  Resources

<Enabling service> Voices for Choices:  Events, Discounts and Deals 

Phase 2:  SHORT TERM:   Years 2-4 GOALS:  Limited - Regional  Implementation

METRIC:  

Year 2:      50 -     250  family caregivers

Year 3:     250 - 1,000 family caregivers

Year 4:  1,000 - 2,000 family caregivers

OFFERINGS:  * = product/service delivering social impact value

Awareness and Promotion Materials:  Topic Highlights

*Plan the Care Kit 

Planning Companions start up & implementation

Consulting and Training services

*Website, finalize

*Website content

Voices for Choices:  Surveys

Voices for Choices:  Events, Discounts and Deals

Voices for Choices:  Conversations

Phase 3:  MID TERM Years 3-5: GOALS:  Expand State-wide Implementation

METRICS:  User satisfaction; Prevention measures; care aware in Stage 1 increases

Year 3:   2,000 -    5,000  family caregivers

Year 4:   5,000 -  10,000 family caregivers

Year 5:  10,000 - 17,000 family caregivers

OFFERINGS:  

Planning Companions on-going

Consulting and Training services on-going

Website maintenance and update on-going

Website content expanded services

Voices for Choices:  Events, Discounts and Deals on-going

Voices for Choices:  Surveys on-going

Explore new delivery methods

Explore new products and services

MEASURES:

Short Term:

• # % “At Risk’ for Medicaid  (those likely to spend all assets during illness duration) reached beneficiaries who use the KIT
• Dyad completion of goals, with completion rate increasing as penetration growth increases; ###li#< in-depth training accessed and % in-depth training completed
• Surveys of active, enrolled caregivers

The short term measures focus on the population that is using Caregiving EssentialsSM services and products.  In the short term the question being answered are:  “Are products being used completely and knowledgeably in order to benefit from prevention activities?”

Long Term:

Caregiver well-being improves (out year)

Dyad goals are met

Transition to more costly settings are delayed or avoided

The long term measures focus on the benefits derived from using the products.  “Are users of the products and services realizing benefits?” and “Do the benefits realized positively impact society?”.

• Those with plans &/or  Planning Companions having a higher well-being
• Those with plans &/or Planning Companions who delay or avoid more costly care settings

It may take a number of years to establish quantifiable measures and collect data, due to illness length, and controlling for the introduction of externally influencing factors.  Due to the complexities it may be that a comparative outcomes analysis is performed, informally.  Consideration will be given in conducting a generalized study of two randomly selected but similarly situated population groups:  users and non-users of the Caregiving Essentials SM Offerings.

MARKET PENETRATION AND PRODUCTS/SERVICES

Currently, the primary beneficiaries of Caregiving Essentials!SM delay before taking action in preparing themselves for the new reality.  Family caregiver often do not self-identify in their role until the second or third stages of caregiving.  Care recipients may not realize the benefits of planning or the costs of long term care services and supports (LTSS), while diagnosing providers have limited knowledge to accurately inform the family in non-treatment next steps.  LTSS  organizations deliver their solutions when the dyad seeks such services, often while problem-solving an immediate need to an emerging, yet predictable, situation.

“Plan the Care Kit” (TM) (KIT) is the  main product line deliverable expected to provide the social impact value when users “plan care and well-being skillfully and resourcefully”.   While a one-time creation, it needs to be the right product (fulfill the need) and a product that is right (accurate) in order to be adopted and generate the necessary demand needed to achieve social impact value.

Caregiving EssentialsSM products and services offerings will seek to be a constant, reliable presence for the dyad from the outset and throughout the caregiving continuum, by providing value-added benefits that improve well-being and advance goal achievement.  Greater benefits are derived from use in the earliest stages of caregiving, therefore  Caregiving Essentials!SM will focus on offerings that contribute appreciable value for the customer. 

Products need to be well-designed and content-rich, easy to access and use and reliably assists in meeting dyad goals.  Services need to enhance and compliment product use, and support and enrich the caregiving experience.  Therefore, the  marketing of offerings will begin up-stream, with customer involvement in product development through testing that ensures that offerings are easy-to-use, understood, and reliably completed.

Products and services that become a constant, reliable presence for the dyad from the outset are more likely to be a resource used throughout the caregiving continuum.  The derived value-added benefits will reinforce the value to users for continued use and reinforce the message to likely adopters or promotors, leading to more users. 

The “delivered quality / promoted awareness / demonstrated benefits” momentum cycle fuels continuous growth of interest and adoption leading to sufficient market penetration.  The marketing strategy discussion that follows will be limited to quality and awareness of initial offerings.

Quality Offerings

Delivering quality engineered products will facilitate both trust and adoption of the products by primary and secondary market segments while increasing the likelihood of completing person-centered goals and activities by primary market segment users.  As the organization becomes more established, the quality engineered products and services will contribute to promoting customer adoption, instill trust, and grow loyalty.  

Products and services will be introduced in phases, each phase building upon product depth as market penetration gradually grows.  The initial consumer deliverables, Plan the Care KitTM product line and Caregiving Community site platform, will devote up-front resources in quality product design deliverables.

Awareness and Timely Access

Time awareness of and access to Offerings will maximize their potential value when used in the earliest stage of the caregiving continuum.  Awareness and promotion campaigns in the first two years will focus on the secondary market in order to throttle demand.

Caregiving EssentialsSM will develop delivery channels along with a targeted messaging campaign, in tandem with releasing its initial deliverable products.  A unifying messaging, one that resonates with all who operate within this market, is “We [the community organization] care because you care.”

FINANCIAL GOALS

The Caregiving Essentials SM financial goal is to maintain its sustaining donors through demonstrated added value to the community, as measured in cost savings per dollar donated within the served community.   Initial efforts will be concentrated in developing  recurring donations that enable realization of the social impact value, known as Sustainer Donors.  Examples of operational efficiencies and that will be built into services, products and processes are (1) product reuse (e.g., reuse of content in training), (2) process efficiencies (e.g., standardized templated), and (3) leveraging knowledge and trust by tapping into transitioning caregivers who are wish to volunteer and mentor others in the caregiver role.

REVENUE STRATEGY

Caregiving Essentials SM will rely on philanthropic funding from a Founding Partner source to fund the first two years of start-up expenses and rely upon Sustaining Donors to fund 95% of recurring expenses (Staff and Administrative) beginning in Year 3.   Revenues or fundings from other sources will complete the 5% cost gap.  Sources of such fundings include  grant awards, one-time donations, fees, and contingency reserve funds.  Core operations will be funded first, with new development costs funded from product funding substitution or earmarked grant funding.

As the organization grows the sponsorship and the team, it will branch to fee-for-service consulting from training and education services to  workforce, medical providers, government entities and health care insurance companies, to name a few.  Fees will vary, depending upon sponsorship plan agreements, but priced to fund content development and maintenance and overhead.

Web-based and app-based tools contain the power to scale awareness, understanding, and use of “Plan the Care Kit”.  

Enhancement apps that train through playing or incentivize through rewards or simplify through reminders, streamline interfaces, images and graphics are envisioned for product expansion to increase adaption.

“Plan the Care Kit” (TM) (KIT) is the  main product line deliverable expected to provide the social impact value when users “plan care and well-being skillfully and resourcefully”.   While a one-time creation, it needs to be the right product (fulfill the need) and a product that is right (accurate) in order to be adopted and generate the necessary demand needed to achieve social impact value.

The KIT synthesizes industry best practices of job competency and project management in the background, through a structured format and explained content, involving guides, worksheets (Kit Guide), and tools (Kit Tools)  that allow users to customize and personalize as they articulate the caregiving goal and focus on decisions and activities for each stage in caregiving.  A series of training videos (Kit Videos) will provide topic-based instruction, in digestible bites, on value, tool use or guide completion.  An overview awareness video, Kit Promotion, will promote awareness of the Kit and highlight the beneficial outcomes from using the Kit.  

A key intervention of Caregiving Essentials!SM, the KIT must deliver on its purpose to “plan care and well-being skillfully and resourcefully”.  The KIT component products will be delivered in two stages, to ensure timely delivery of quality products that fulfills its mandate. (Services to ensure timely and appropriate Kit completion will be gradually introduced in a complimentary service line.)

Kit Guide and Kit Promotion will be the first products to be delivered.  Kit Tools and Kit Videos will be delivered in a second phase, while usable work products will be available upon request and with oversight.

The Kit Guide, Tools and Videos will be available on the web platform, with enrollment, and the Kit Promotion will encourage enrollment, hosted on the web platform along with content intended to engage caregivers and provide  curated, contextual links.

My early years of navigating through “exclusion” experiences of patriarchy, class, gender and “ability” contributed to my learning experiences gained from observation education, and communication.  

Working at the national effort managing complex, innovative IT software development I applied equity through a “selection-blind process” centered on objective-based application reviews preserving candidate anonymity, and inclusivity by providing weighted value to transferrable skills while achieving diversity by forming a talent-rich team composition hailing from heterogenous cultures, backgrounds, identities. 

I embrace the diverse richness of individuals, organizations, cultures, and the national influences and ethnic backgrounds of each personal-lived experience within a team.  Teams that assemble around a goal, unify as symbiotic whole when infused with values and a supportive inclusive environment.

I view the constituency served by this endeavor to be reached through contextually appropriate education and knowledge imbued with respect, dignity and understanding.  To that end:

• DEI will be built into the product by engaging a mix of urban/regional communities, as well as proportional minority representation in the more diverse urban areas,  in product design, development and implementation.

• Additionally, board members will have diverse backgrounds.  Of the five members being considered, one will be male, two will be BIPOC, three born outside the US — two of whom are naturalized, one who is a person with a disability.

KEY RESOURCES

KEY ACTIVITIES

SEGMENTS

VALUE PROPOSTION

Brand and IP

Web Platform

[Sustaining] Donors

Volunteer [network]

Caregiving team education;

Caregiving team interventions;

Engaging with key customer stakeholders; 

Caregiving community collaborative web

BENEFICIARY:

Family Caregiver Care Receiver

INDIRECT BENEFICIARIES

Non Profits

Support Groups

Provide non-care education and assistance gaps to caregiving team.

PARTNERS & KEY STAKEHOLDERS

TYPES of INTERVENTION

CHANNELS

CUSTOMER VALUE

Funding and Access Partners

IT technical support

Payment vendors

Caregiver planning guides, tools, education & training

Caregiving community collaborative web

Community awareness sessions

Mentor/Companion volunteer services

Caregiving Interfaces:  awareness/access/entry points;

Partner Organizations;

Support Groups 

Improve well-

  being and

  performance; 

Optimized use of

   resources

CUSTOMER RELATIONSHIPS

COST STRUCTURE

SURPLUS

REVENUE

IMPACT MEASURES

Donors

Channels

Staff

On-line Platform

Products

Web Enhancements

Marketing

Networking

Sustaining Donors

  100% to 85%;

Volume donors

   0% to 10%

# caregivers

    trained

# care plans 

  completed & 

   goals met

# transitions from 

   home based care

FINANCIAL GOALS

The Caregiving Essentials SM financial goal is to maintain its sustaining donors through demonstrated added value to the community, as measured in cost savings per dollar donated within the served community.   Initial efforts will be concentrated in developing  recurring donations that enable realization of the social impact value, known as Sustainer Donors.  Examples of operational efficiencies and that will be built into services, products and processes are (1) product reuse (e.g., reuse of content in training), (2) process efficiencies (e.g., standardized templated), and (3) leveraging knowledge and trust by tapping into transitioning caregivers who are wish to volunteer and mentor others in the caregiver role.

REVENUE STRATEGY

Caregiving Essentials SM will rely on philanthropic funding from a Founding Partner source to fund the first two years of start-up expenses and rely upon Sustaining Donors to fund 95% of recurring expenses (Staff and Administrative) beginning in Year 3.   Revenues or fundings from other sources will complete the 5% cost gap.  Sources of such fundings include  grant awards, one-time donations, fees, and contingency reserve funds.  Core operations will be funded first, with new development costs funded from product funding substitution or earmarked grant funding.

As the organization grows the sponsorship and the team, it will branch to fee-for-service consulting from training and education services to  workforce, medical providers, government entities and health care insurance companies, to name a few.  Fees will vary, depending upon sponsorship plan agreements, but priced to fund content development and maintenance and overhead.

While I have drawn up the Articles of Incorporation, I have stalled on creating the non-profit due to the overhead it involves, requiring five directors.  Paid, full-time staff of 8, together with token honorarium payments, would run $350,000 -- a major portion of the budget, placing the organization competing for limited resources.  Staff size is narrower.  An alternate to standing up a nonprofit is to identify a non-profit willing to undertake the project via a contract arrangement (fiscal sponsor) thus allowing Caregiving Essentials to be eligible for grants requiring a 501(c)(3) nonprofit status. Until I can locate a willing nonprofit sponsor, I will move forward for a limited time with standing up a web site and incorporating a nonprofit.

I am leverage free administrative products, such as ZOOM and SureveyMonkey, to validate concept and product interest.

Engaged as a volunteer on a state-wide effort and national effort, I have exposure to possible sustainers (identifying potential sustaining donors), and assumption validation of both the solution need and design simplicity (or tutorials for complete product use).   My volunteer efforts further convince me that current inequities are systemic, due to lack of funding and political will, while individual caregivers have indicated a strong interest to be proactive in their role.