moon organization
educational Organization for xeroderma pigmentosum patients in Egypt as they 're marginalized in the Arab world
my solution is a night learning organization for xderma pigmentosum patients in egypt and it'll accept any patient from any country as they 're marginalized in the arab countries and they can't study or do anything so this organization 'll give them Various classes in science, history, geography, space and we can add extra subjects after that and the other important classes 'll make them work online like programming and designs classes so we can let them study and work like anyone ....the second section in that organization 'll be for talents and hobbies like music, drawing, writing and reading ...also there 'll be sports and social events
finally we 'll give who wants to take high school diploma the chance by learning them english in the organization and helping them apply to an online accredited school in usa that accepts student from all over the world with any age and any educational background as they can't do that in the arab world because they 're different ages and even if any school accepted them they 'll have to go in the morning and that will lead them to death
the problem is xderma pigmentosum patiens who can't go outside because of the sun .they 're suffering in the arab countries they don't 've any help and no interest they can't study and can't do any thing and just staying at home to survive ..i watched two mothers speaking about their daughters one of them said We sacrificed our daughter's education to keep her alive and the another mother said I will take my daughter to a psychiatrist because of her lack of social life and she always sits alone ..it's so cruel thing..so it 's very big problem for those people as they Deserve better life like normal people and also Because of the ignorance of that disease, they are being bullied
so the consequences result from the problem is very cruel for the patients and make their lives without meaning
about the numbers i can't mention specific number so by reasearching what i know is The highest number of infection with this disease is found in the Arab countries and This is an explanation of the infection rates in the world
north africa (1 out of every 10000) Europe ( 1 out of every 100000) America ( 1 out of every 1000000) the arab world Especially the Arab Maghreb is more than 3000 patient 1000 of them are in Tunisia
my solution serve xderma pigmentosum patiens or moon children In Arab Countries as they cannot be exposed to sunlight and this can lead to death and the Arab countries do not provide them with any assistance so they 're suffering at their homes with nothing no learning no social life
my solution 'll change their lives a lot it 'll give them what they need like any normal person they 'll be educated , they can enjoy different activities , have social life and make friends This solution will change the lives of many current and future patients.
i searched a lot and watched a lot of videos of the patients and their family talking about their problems and how they suffer i learned about them from their experience with this disease and i understood their exact problems and what they need to end this suffering
- Other: Addressing an unmet social, environmental, or economic need not covered in the four dimensions above
I could not specify the field of learning in general because my solution targets a specific group and they are moon's patients and not just in education but also socially
So I think the appropriate classification for it is education and caring for moon's patients
it 's important because they 're humans and deserve normal life like everyone
- Concept: An idea being explored for its feasibility to build a product, service, or business model based on that idea
i selected concept because until now what i have is the idea of the organization and the plan for how it 'll work
- A new project or business that relies on technology to be successful
There will be facebook page for marketing and website for the organization. After marketing the idea, applications will be received from those wishing to join, whether from moon patients or volunteers by the website
The site will also help in the participation of moon patients from countries who are unable to come to the headquarters of the organization by participating in online group classes and online events with students like them.
- Audiovisual Media
- Crowd Sourced Service / Social Networks
- Software and Mobile Applications
- Egypt, Arab Rep.
i haven't launched my solution yet so i wish that the next year this solution helps As many moon patients as possible and because the project will be at the beginning, I plan to serve 200 people.
my impact goals next year first, it is to highlight moon patients in the Arab world as much as possible so that we can pay attention to them and help them, and secondly, I aim to change the lives of these people and give them the chance to live a normal life full of learning , activities and support.
Currently, I am planning something else beside the organization. I decided to use my writing talent and started writing a 6-episode series about moon patients and When I finish writing it, I will start showing it to the production companies..This will also be a good chance to spread awareness about the disease, as there are many people in the Arab world love watching series .
For me, measuring the progress of the project will be with each new one of moon patients, I can change his life for the better
i can't measure now as the project is still just an idea but when it come true, the measure of its progress will be the extent of its impact on these people From a scientific, educational and social point of view
The greater the number of beneficiaries and the improvement of each of them, this means that the project is in progress
first the financial barriers where The project and creating the organization needs in the beginning financing and marketing so that we can receive students and donations afterwards
Secondly, the legal barriers It will not be easy for me to obtain permits and legal papers for the organization because of my young age as i'm 18
As I said before, I don't have a team for the project yet, but I will talk about myself and what I am trying to do to serve this project in addition to researching and developing plans for it. I study many things now online, including human resources and team management because I think this will increase my experience to manage this project and try to benefit from my writing talent In writing an Arabic series about them
I am also trying to study programming online now. I think that my study of programming can be useful in developing the project after that, because machine language is the future.
currently there 's no partners
- Yes
This award will be very useful for the expenses of the first year of the project and for the start of the project
- Yes
The Pozen Social Innovation Prize will also help with project implementation expenses
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